Wednesday, October 12, 2011

the start of something good


We recently celebrated the start of a beautiful journey. Together, with many friends, family and colleagues Steven and I celebrated the Madison Clinic for Pediatric Diabetes at UCSF, which on November 1st will open it's doors and begin a legacy of serving hundreds of families dealing with diabetes.

The night began with Steven explaining diabetes, how parents deal with the disease and the trials that come with it. I followed by describing the steps we took to find Dr. Saleh Adi and the miraculous change that has come to our family since, while Dr. Stephen Gitelman discussed research and the future of diabetes. Dr. Adi talked about his vision for the clinic and in his amazingly empathetic way shared what it's like from his side to watch families struggle with diagnosis and then eventually ease into the normalcy that silently comes without notice when you are too busy counting carbs. 

Before the amazingly fun Suite Love Express took the stage Steven explained how the name of the clinic came to be, Madison being Electra's middle name. Steven was so incredibly elegant when we initially explained the clinic to Electra, telling her how important it was to us to help Dr. Adi realize his vision, and the good feeling that comes from helping others when it's possible. Throughout the conversation she sat silently nodding with a grin on her face, but when the mention of the name was explained she broke out in a sob. There was a moment of silent confusion before I asked if those were happy or sad tears. Turns out they were tears of joy as she ecstatically, yet without words, gave her approval for what is bound to become a historical moment in the advancement of pediatric diabetes treatment for thousands of families along the west coast.  Good things are in store.




Wednesday, October 5, 2011

the strength of a child's hand


Lucy has been going through a fearful phase lately. As the pinks and golds fall upon the horizon she has taken to turning on nearly every single light in the house, closets included.  We keep waiting for this phase to pass, yet months after her viewing of Edward Scissorhands, which is what set this routine in motion, the switches keep coming on. I'm almost certain that PG&E will be sending us a holiday card this year. In addition to being the brightest house on the street Lucy has not only set up camp on our bedroom floor, but has also become my shadow, running behind me from one room to the next, never wanting to be left alone for a single second. There are days when this can get a bit tedious, but then in the quiet moments, the tenderness of it all becomes evident.  "Mommy, where are you going? Can you stay here with me?"  These are the moments I will long for and find nostalgic when she becomes the self-sufficient and independent being she is sure to become.  As I hold her hand and read to her each night I find myself in awe of her beauty and honest admission of simply being afraid. If we could all admit our fears so easily the world would be a very different place.

So, what are your fears? I know mine and the thought of losing each or any one of them could easily send me racing for the nearest light switch.